There will be many decisions to make at this stage of the disease.

• Refer to and follow any documents that the person with the disease has made to take care of his wishes. They may be referred to as a Personal Directive or a Power of Attorney.
• If plans are not already in place, decide who will be responsible for making financial, legal and care decisions.
• Follow the person's wishes, if you know them. Otherwise, decisions will need to be based on the person's lifelong values and desires and what you think the person would want.
• Advise the health-care team of any expressed medical wishes and include the team in the decision-making process on medical issues.
• A lot can change during the course of this stage. Keep informed of any changes in the person's condition that may mean more decisions must be made.

It can be challenging for family members to agree on what to do, but through talking and understanding, conflict can be reduced and crisis decision-making avoided. The Alzheimer Society can connect you with professional support from counsellors, social workers and family mediators.

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Additional Reading

The Progression of Alzheimer's Disease - Overview

The Progression of Alzheimer's Disease - End of Life

All About Me

Quality of Life

Day-to-Day Series - Communication

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