Preparing for Changes Ahead

Part 2: Decision Making

Decisions will need to be made throughout the late stage of dementia. These decisions may be difficult and you may feel uncomfortable making them, especially those dealing with life-prolonging treatments and what the individual might consider a comfortable death.

Sometimes, having a plan to follow when making decisions is helpful. This allows you to think things through ahead of time rather than just reacting in a crisis.

Click the link below to access a personal decision guide.  Take a few moments to review the guide and use it to help you work through a current decision that you are facing.

Personal Decision Guide for People Making Health or Social Decisions

All end-of-life care decisions should be guided by respecting the expressed wishes of the person with dementia. A guiding principle should uphold his/her dignity, privacy, and safety.

When making decisions on behalf of another person, it is important to follow the person's wishes if they are known. If they have not been communicated, knowing his/her values and beliefs can help you make a decision that most closely resembles the one he/she would have made. 

More Learning Resources

Comfort Care at the End-of-Life for Persons with Alzheimer’s Disease or Other Degenerative Diseases of the Brain

Dementia and End-of-Life, Part 1: What decisions do I need to make?

Progression Series: Late Stage

A Handbook for Care