Resources

Part 3: Helpful Resources

Booklet

The Progression of Alzheimer's Disease
This valuable resource is available online at:
http://www.alzheimer.ca/english/disease/progression-intro.htm

Websites

Alzheimer Society of Canada 
http://www.alzheimer.ca

The Alzheimer Society of Canada identifies, develops and facilitates national priorities that enable its members to effectively alleviate the personal and social consequences of Alzheimer's and related diseases, promotes research and leads the search for a cure. On this website you will find facts, causes, myths, statistics, support groups and treatment options.

The Alzheimer Society has useful information on the transition to long term care. Information on preparing for the move, the moving day, and adjusting can be found at the following link: http://alzheimerottawa.ca/we-can-help/links-and-resources/e-learning/transition-to-long-term-care

Canadian Hospice and Palliative Care Association
http://www.chpca.net/

The Canadian Hospice Palliative Care Association (CHPCA) offers leadership in the pursuit of excellence in care for persons approaching death so that the burdens of suffering, loneliness and grief are lessened. You will find a list of palliative care programs in different provinces and resources.

Changes Toolkit
https://www.changestoolkit.ca/

The Changes Toolkit is a website with activities and resources to help palliative care patients and their family caregivers deal with transitions.

Health Canada: Natural Health Products
http://www.hc-sc.gc.ca/

The Natural Products site at Health Canada provides information on "herbal" or other natural products. Go to the Health Canada website (use the link above). Click on: (1) English, (2) Drugs and Health Products (on the left side), (3) Natural Health Products (also on the left side).

Heart and Stroke Foundation 
http://www.heartandstroke.ca

The Heart and Stroke Foundation, a volunteer-based health charity, leads in eliminating heart disease and stroke and reducing their impact through the advancement of research and its application, the promotion of healthy living, and advocacy. On this website you will find health information about heart disease, stroke and healthy living, as well as multicultural resources.

Health Canada: Drug Products
http://www.hc-sc.gc.ca

The Drug Products site at Health Canada provides information on drugs approved for use in Canada. Go to the Health Canada website (use link above). Click on: (1) English, (2) Drugs and Health Products (on the left side), (3) Drug Products, (4) Drug Product Database, (5) Access the Drug Product Database.

Living With Dementia: Resources for Living Well
http://www.livingwithdementia.uwaterloo.ca/index.html

This site was developed for persons living with dementia and their family care partners. It contains helpful information and resources to help prepare for the road ahead.

Medline Plus (U.S.)
http://www.nlm.nih.gov/medlineplus/

Medline Plus contains information on a wide range of diseases, medications, and other health topics. Some information is available in multiple languages or in multiple formats (e.g. text, video, and interactive tutorial).

Books about Real-Life Dementia Experiences

€˜Dancing in the Elevator' by: Barbara Schulman, Beverly Grostern and Donna Lordon. 
This book contains a compilation of anecdotes about life with Alzheimer's disease.

€˜Dancing with Dementia' by: Chrisitne Bryden
This book is a vivid account of a top civil servant and mother of three who was diagnosed with dementia at age 46. The author writes about the day to day challenges she deals with as a person affected by dementia.

Research Studies

Aging, Community and Health Research Unit (https://achru.mcmaster.ca)

Caregiver-Friendly Workplaces (http://ghw.mcmaster.ca)

Living with Hope Research Program (http://www.nurs.ualberta.ca/livingwithhope)

Murray Alzheimer Research and Education Program (https://uwaterloo.ca/murray-alzheimer-research-and-education-program/education-and-knowledge-translation/products-education-tools/by-us-for-us-guides#Safely)