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Common topics:
Advocacy and Communicating with Staff:
Person-Centred Language Guidelines
Grieving and Loss:
Seeds of Hope Family Learning Series (Session 14 - Taking Care of You: Grief and Self Care)
Ambiguous Loss & Grief - brainXchange Webinar
Transitioning to Long-term Care:
Visiting a Person with Dementia
The Visitor Guest Book: A Tool to Stay Informed
Other Information:
Helping children understand Dementia
Links to other fact sheets for caregivers by the Alzheimer Society, ranging from tips for after the move, care for the caregiver, maintaining relationships, taking a break, financial planning, and managing conflict.
Websites and Online Communities:
Alzheimer Society: About Dementia
Dementia is a general term that refers to a variety of brain disorders. Physical changes in the brain cause dementia. Learn more in this section about dementia, its impact on the brain, and how to keep your brain healthy.
Canadian Hospice and Palliative Care Association
The Canadian Hospice Palliative Care Association (CHPCA) offers leadership in the pursuit of excellence in care for persons approaching death so that the burdens of suffering, loneliness and grief are lessened. You will find a list of palliative care programs in different provinces and resources.
The Changes Toolkit has activities and resources to help palliative care patients and their family caregivers deal with transitions.
Health Canada: Natural Health Products
The Natural Products site at Health Canada provides information on “herbal” or other natural products. Go to the Health Canada website (use the link above). Click on: (1) English, (2) Drugs and Health Products (on the left side), (3) Natural Health Products (also on the left side).
The Heart and Stroke Foundation, a volunteer-based health charity, leads in eliminating heart disease and stroke and reducing their impact through the advancement of research and its application, the promotion of healthy living, and advocacy. On this website you will find health information about heart disease, stroke and healthy living, as well as multicultural resources.
The Drug Products site at Health Canada provides information on drugs approved for use in Canada. Go to the Health Canada website (use link above). Click on: (1) English, (2) Drugs and Health Products (on the left side), (3) Drug Products, (4) Drug Product Database, (5) Access the Drug Product Database.
Living With Dementia was developed for persons with dementia and their family care partners. It contains helpful information and resources to help prepare for the road ahead.
Medline Plus contains information on a wide range of diseases, medications, and other health topics. Some information is available in multiple languages or in multiple formats (e.g. text, video, and interactive tutorial).
Books about Real-Life Dementia Experiences:
Dancing in the Elevator by Barbara Schulman, Beverly Grostern and Donna Lordon.
This book contains a compilation of anecdotes about life with Alzheimer’s disease.
Dancing with Dementia by Christine Bryden
This book is a vivid account of a top civil servant and mother of three who was diagnosed with dementia at age 46. The author writes about the day-to-day challenges she deals with as a person affected by dementia.
